May 30, 2013
Media contact: Joy Bell, 404-778-3711, email@example.com
(Atlanta) Emory Eye Center will join 15 other eye centers throughout the world participating in the Childhood Glaucoma Research Network's (CGRN) newly launched International Pilot Survey of Childhood Glaucoma (IPSOCG), its first collaborative international clinical research project.
The CGRN was formed two years ago with the mission of serving as a catalyst to promote progress in pediatric glaucoma. The growing network of ophthalmologists serves more than 100 members from every region of the world and includes many thought leaders from the largest eye centers.
IPSOCG is the first of two CGRN clinical research projects involving multiple international centers that will prospectively study the types, treatments and outcomes of childhood glaucoma. IPSOCG has the potential to identify approaches to management that will inform further research to improve the care of children with glaucoma throughout the world.
1. Determine the types of childhood glaucoma managed at major eye centers globally.
2. Determine the approaches to care and identify national and international differences.
3. Determine outcomes of intraocular pressure control and visual acuity.
Data will be collected at 16 major eye centers located around the world using OpenEyes online reporting tool. Enrollment will continue for 12 months, and patient outcomes will be followed for 18 months after enrollment, assessed at six-month intervals.
"Too little is known about the incidence and outcome of patients with childhood glaucoma," says Emory glaucoma specialist Allen Beck, MD, the William and Clara Redmond Professor of Ophthalmology. "Almost all of the available studies present the findings of one investigator or one center. This project will provide critical epidemiological data, and lead to improved treatment strategies for this potentially blinding disease."
"IPSOCG is one of the most exciting new developments in pediatric glaucoma in the last 10 years," said John Grigg, head of the discipline of ophthalmology at the Save Sight Institute in Sydney, Australia. "It provides a foundation to improve future research into new treatments for our patients."
A number of expert collaborators have contributed to IPSOCG, including the University of Minnesota Department of Ophthalmology and Vision Neurosciences, the Minnesota Lions Vision Foundation, the Glaucoma Research Network Coordinating Center at Wilmer Eye Institute, the OpenEyes Project at Moorfields Eye Hospital, Bascom Palmer Eye Institute and the GL Foundation for Children with Glaucoma.
"This level of collaboration in the field of pediatric glaucoma is unprecedented," said Alana Grajewski, MD, professor of ophthalmology, University of Minnesota Department of Ophthalmology and Visual Neurosciences (OVNS) and study co-chairperson. "In addition to the clinical findings, IPSOCG will teach us essential lessons in conducting collaborative clinical research on a global scale that will benefit future CGRN research.''
"IPSOCG will provide the opportunity to examine international differences in treatment approach and outcomes, and will help us to understand what are the best ways to approach treatment of the various types of childhood glaucoma," said Grajewski.
Many people are unaware that babies and children can develop glaucoma. While relatively rare, it is a leading cause of blindness in children especially in the developing world. While far less common than other childhood conditions, such as asthma or diabetes, it is a more complex chronic condition than the more common form of glaucoma that occurs in adults. It often requires multiple procedures and examinations, and careful lifelong follow-up is essential. With early detection and prompt effective treatment, these children can maximize their potential and sometimes achieve near normal vision in at least in one eye.
The CGRN is a global organization serving over 100 members and was founded on the belief that a global network of ophthalmologists who share a mutual interest in childhood glaucoma will complete clinical research more rapidly and effectively and will more efficiently apply results. CGRN is dedicated to completing clinical research and educational projects that will translate to better diagnosis, treatment and clinical care of childhood glaucoma. CGRN was started by the GL Foundation for Children with Glaucoma (GLF), a non-profit organization based in Miami Lakes, Fla. The CGRN is managed by the GLF and governed by an independent executive committee. The University of Minnesota Department of OVNS, the Minnesota Lions Vision Foundation and Bascom Palmer Eye Institute provide funding support for CGRN.
Bascom Palmer Eye Institute, Miami, Fla.
Birmingham and Midland Institute, Birmingham, United Kingdom
Duke Eye Center, Durham, N.C.
Emory Eye Center, Atlanta, Ga.
Jules Stein Eye Institute, Los Angeles, Calif.
King Khalid Eye Specialist Hospital, Riyadh, Saudi Arabia
L V Prasad Eye Institute, Hyderabad, Andhra Pradesh, India
Massachusetts Eye and Ear Infirmary, Boston, Mass.
Moorfields Eye Hospital NHS Foundation Trust, London, United Kingdom
Singapore National Eye Center, Singapore
Sydney Eye Hospital, Sydney, New South Wales, Australia
UC Davis Eye Center, Sacramento, Calf.
University Hospitals Würzburg, Department of Ophthalmology, Würzburg, Germany
University of Minnesota Department of Ophthalmology and Visual Neurosciences, Minneapolis, Minn.
University of Pittsburg Medical Center – Eye Institute, Pittsburgh, Penn.
Wills Eye Institute, Philadelphia, Penn.
Tami Frank, +1 952-221-2588, firstname.lastname@example.org
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